Lauren
Friday, October 18, 2013
Friday, October Eighteenth, Two Thousand and Thirteen
Unfortunately, I never made it to New York. On Monday I was admitted to Christ due to high fevers and low numbers/platelets. I've been here all week. As of now, I will fly out on Sunday and start the T-cell treatment Monday. We'll get there!
Lauren
Lauren
Sunday, October 13, 2013
Sunday, October Thirteenth, Two Thousand and Thirteen
Hello,
Plans change so quickly around here. My mom and I fly to New York on Tuesday. I am going to Memorial Sloan-Kettering Cancer Center where I will meet with Doctor Richard O'Reilly. Dr. O'Reilly has developed and introduced in clinical trial, a new immune cell therapy that helps manage Epstein-Barr-virus lymphomas. I will receive third-party T-cells to help destroy the Epstein-Barr-virus. I will receive the T-cells one day a week for three weeks. The hope is that this past chemo along with these T-cells will reduce the amount of active cancer and allow me to get the stem cell transplant. Unless the cancer is reduced, the stem cell transplant would not be effective.
Fortunately for us, we have family in NY and will stay with my uncle about 30 miles from the hospital. It is still unclear whether I will stay overnight at the hospital as I receive the T-cells. This plan was formulated on the spur of the moment and is lacking details. I will try to update the blog once I have my consultation with Dr. O'Reilly on Wednesday, October 16th.
You can read more about Dr. O'Reilly here:
http://www.mskcc.org/cancer-care/doctor/richard-o-reilly
Lauren
God before you,
God behind you,
God above you,
God within you.
Plans change so quickly around here. My mom and I fly to New York on Tuesday. I am going to Memorial Sloan-Kettering Cancer Center where I will meet with Doctor Richard O'Reilly. Dr. O'Reilly has developed and introduced in clinical trial, a new immune cell therapy that helps manage Epstein-Barr-virus lymphomas. I will receive third-party T-cells to help destroy the Epstein-Barr-virus. I will receive the T-cells one day a week for three weeks. The hope is that this past chemo along with these T-cells will reduce the amount of active cancer and allow me to get the stem cell transplant. Unless the cancer is reduced, the stem cell transplant would not be effective.
Fortunately for us, we have family in NY and will stay with my uncle about 30 miles from the hospital. It is still unclear whether I will stay overnight at the hospital as I receive the T-cells. This plan was formulated on the spur of the moment and is lacking details. I will try to update the blog once I have my consultation with Dr. O'Reilly on Wednesday, October 16th.
You can read more about Dr. O'Reilly here:
http://www.mskcc.org/cancer-care/doctor/richard-o-reilly
Lauren
God before you,
God behind you,
God above you,
God within you.
Sunday, October 6, 2013
Sunday, October Six, Two Thousand and Thirteen
Hello from OSU,
I had a PET scan this past Monday, September 30th. The results were not pleasing to my doctor. Basically, my body did not respond to the new anti-body drug, brentuximab, as he had hoped. The PET scan showed progressive Lymphoma. Dr. Baiocchi decided to go forth with another 5-day chemo regimen. If I proceed with the transplant now, it could possibly go to waste because I still have too much disease in my body at this time. I have the best chance of transplant with the smallest amount of disease...so again, I am fully on board with his decision to postpone it until the "window of opportunity" appears.
There are few options up in the air for the next several weeks regarding my treatment...but nothing has been finalized.
As always, thank you again for all of the support and prayers!
On a side note, Kristen put together a team for the Cincinnati chapter of the LLS (The Leukemia & Lymphoma Society) for the Light the Night Walk this upcoming Thursday, October 10th. No need to donate because everyone has done so much already! Here is the link to the page to view:
http://pages.lightthenight.org/soh/Cinci13/LaurenLenglesSupporters
I had a PET scan this past Monday, September 30th. The results were not pleasing to my doctor. Basically, my body did not respond to the new anti-body drug, brentuximab, as he had hoped. The PET scan showed progressive Lymphoma. Dr. Baiocchi decided to go forth with another 5-day chemo regimen. If I proceed with the transplant now, it could possibly go to waste because I still have too much disease in my body at this time. I have the best chance of transplant with the smallest amount of disease...so again, I am fully on board with his decision to postpone it until the "window of opportunity" appears.
There are few options up in the air for the next several weeks regarding my treatment...but nothing has been finalized.
As always, thank you again for all of the support and prayers!
On a side note, Kristen put together a team for the Cincinnati chapter of the LLS (The Leukemia & Lymphoma Society) for the Light the Night Walk this upcoming Thursday, October 10th. No need to donate because everyone has done so much already! Here is the link to the page to view:
http://pages.lightthenight.org/soh/Cinci13/LaurenLenglesSupporters
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